It pains me to say this and I doubt any one will believe me, but those that have LPHS and are getting it now are luckier than those of us that got it 10 years ago. Mine began when I passed out in paleontology class at University – I was taken to hospital and told I had stones and they didn’t know what else – but protein and hematuria…4 years later, dozens of hospitalizations, surgeries and God only knows how many tests, I went to Mayo Clinic and Shands and BOTH finally diagnosed me with LPHS with recurrent kidney stones.
- Author name:
- ryecroft
- Discussion:
- No Comments
Went terrible! I have Slight and Moderate Disc Protrusions to C-5, C-6, and C-7 Cervical/Neck and have been managing the pain for many years with mild opiate dosages, and valium to relax the muscles around the damaged discs. My Pain Doctor Clinic told me; the insinuated that they would not continue to give me my med.’s unless I did the shot. I did not want to and expressed myself that I have read that Steroids long term will degenerate bone material, and since I already have a degenerative disc disorder, disease, why push it? The med.’s were doing their job! I think the clinic just wants to be able to bill for the shot which is a lot.
So I took the shot, and it was like 10+++ pain! I cryed uncontrollably all the way out of the office. IT hurt so bad. (I had another one done on my arthritic hip no problem to give them their need to bill my insurance).. and it ended up causing me now to have numbness in both of my hands and my last two fingers of my left hand and I am left handed. I have heard this numbness turns into pain, especially during the cold. I am very angry. I want to sue them.. now I have to have an MRI and a NRA (nerve test or something) that he caused! I am already on disability and am a freelance graphic designer to try to make up for the little income that disability provides, and I am not sure what this will do to my ability to Freelance. Has anyone been able to sue their doctor; I am sure I probably signed my rights away, but I don’t recall signing anything… just was given instructions and valium that did not work at all to calm me down.
- Author name:
- unsigned5
- Discussion:
- No Comments
In 2006 I was working in the ER and was injured. I went back to work after a few days and tried to get over it. Having 3 kids and going through a divorce, being unemployed was simply not an option. Then I had to work in our Psych department one night. Man on PCP came in and when I went to draw his blood and put in his IV, he attacked me. Security was no where in sight. I had already popped my arm out the previous month so this was not so good for me. He ended up dislocating my shoulder, throwing me around so much I had herniated 3 discs in my C-spine and my spinal cord was pinched. The next 5 years have simply been a nightmare…
I never had surgery on my neck but I did have the shoulder fixed. Now my chronic pain is from my disc herniation and multiple other conditions within the spine. I went to college to work with people and save lives. I loved being a nurse but now look at me. I am in my 30′s and are forced to do things only people in their 70′s can do. I am in pain all day long, every single day. I often ask myself what I did to deserve this. I was a good wife, great mother, and provider for the house. I have a good heart and love helping people not hurting people. So why? I still have no answers but it’s depressing. I also take medicine for depression. Not anything strong but something to get me up in the morning. Otherwise I will be a vegetable in bed and not want to get up. I have to work from home now to make money. SSI I was approved for but that is a joke. Being so young that payment will not even pay for the food in this house. So I struggle… While the man who did this is most likely still doing PCP or in jail, and not even remembering my name…
- Author name:
- Heather80
- Discussion:
- No Comments
I’ve had this pain in my neck for 6 years and I am only 30. It started when I hit my head in a car accident and ever since the pain has been crazy. I have no Insurance so getting any treatment has seemed to be non existent in my area were I live. The pain is on the left side of my upper neck and it feels like it’s down to the bone it radiates pain into my shoulder that extends into my arm and down my hand. It burns. It never goes away just sometimes lets up a little. It’s so bad at times I’ve went to the E.R. AND THEY JUST LOOK AT ME LIKE A CRACK HEAD HUNGRY FOR DRUGS!!! I have had muscle spasm in this same area so bad I also had to return to the E.R AND THEY GAVE ME SOME MUSCLE RELAXERS WHICH DID SEEM TO HELP. I’VE HAD TO START SLEEPING ON MY BACK AT ALL TIMES WHEN i CAN GET ANY SLEEP CAUSE IT HURTS TO BAD TO SLEEP ON MY SIDE. tHIS PAIN HAS ONLY GOTTEN WORSE AND i DON’T KNOW WHATS WRONG AND DON’T KNOW WHAT TO DO ANY HELP OUT THERE???
- Author name:
- b
- Discussion:
- No Comments
I had my first shot yesterday. I hardly felt anything but a little pressure during the procedure. They gave me the local anesthesia hooked up to the back of my hand because my arm veins are hard to find. After applying something to freeze the back area, they did the procedure.
They monitored me for blood pressure and heart beat for maybe half an hour after wards. I said I feel fine…. with no adverse reaction. They released me.
I walked a ways out of the hospital to the underground parking structure and headed home. My sister drove me. I had left my car at her house and insisted I was fine to drive myself the 30 minutes to my home. I felt very good. I didn’t feel like I had medication in me. No drugged feeling at all. Just relief.
After a couple of hours at home, the pain medication wore off I felt the stiffness in my lower back that I have always had for years.
It is the next day now and I feel a big relief. Still a little stiffness, but no leg or buttock pain. I also have the L4 and L5 degeneration. Sciatica and leg weakness due to degeneration. I feel great today.
I had it done because the neurosurgeon said he didn’t see any surgery was needed.
I had trouble standing upright for more than a few minutes. I couldn’t walk a half a block without my legs becoming numb.
I honestly feel a little over 24 hours later like a new man. I am looking forward to getting back on the treadmill maybe tomorrow. I need to lose about 40 pounds.
They say to get and keep moving shortly after having it done. I will do whatever necessary to make this work.
Oh….did I tell you I am 67 years old?
- Author name:
- seven
- Discussion:
- No Comments
Take me now so my pain can go away,
in my sleep! Or out on the street!
My life and its events makes me feel it’s my destiny,
makes me believe in what they call fate!
Fate?
A definition in which I’ve said fate is nothing less then what you make
so if I’m destined for hell, why am I living it?
If I’m destined for another reality why is it in this one I remain?
Take me now?
and stop letting me endure this pain,
if its a test then Ive passed,
I find myself on the other side amongst the grass which is green-err than my past,
yet my fate will still blow with the wind,
so can I actually escape?
If I’m destined if it’s my fate,
should I wait?
Should I take control?
Make a decision?
With blurred vision?
It may not be right, as I stand weakened and all out of might,
all out of directions,
only ONE path remains
take me now!!!!
As….
i reach my life’s destination,
i see piece,
i feel no grief nor pain,
i used to sit in pure darkness because my days didn’t shine,
i used to sleep into a next reality because i was afraid of mine,
i see light,
yet still Anorexic by mind, body and soul,
a combination which still leaves me without might.
- Author name:
- fossil
- Discussion:
- No Comments
RSD means you don’t have a normal life. Things that mattered before RSD, do not matter now. The cold, windy, wet days when you can’t even go outside. It’s like having a demon on your back, even though you want to fight him, he won’t quit.
My name is Sylvia Brown, and I have had RSD since 2002,after a minor bicep tendon repair that turned into two surgeries, as the left arm was useless, and I’m left handed. It all begin as a simple surgery that meant I could go back to playing racquetball, tennis, weightlifting, etc. I’ve always been an active, sports-minded person, enjoying a variety of things. That came to a dead stop, one month after the surgery I was in the worst pain I’d ever had, and I’ve had 3 children. Even hard labor does not compare. Suddenly your friends who you thought were friends just quit coming around. No one knows what to do, so they do nothing.
At one time I was on 31 pills a day, still with hardly any pain relief, living in a dull, aching, burning, foggy life. I wanted to kill myself, because I couldn’t stand to watch my 9 year old daughter, Raechel, taking care of me, when she should have been out playing with her friends, like a normal child. I spent my days in bed, my massage chair, and the couch, crying, screaming in pain like I was being punished for something I didn’t do. I spent 31 days in the hospital, after being prescribed Cymbalta, had an allergic reaction that caused hallucinations for 3 weeks. I wasn’t myself. Something had taken my life over, and I couldn’t do anything about it. I tried treatment after treatment, visiting MD’s who said I was fine, which made me feel even worse. I have been disabled for 9 years, living with my husband and last child, Raechel. I’m doing better now than before, as I’ve discovered ECT, Electro Convulsive Therapy, which stimulates my damaged nervous systems, allowing me to have immediate relief of pain. Picture, if you will, having a one ton rock crushing you, then being lifted off. It gave me my life back. I still have RSD, and I’ve only cried once this year, being mad at the world, asking my Father in Heaven why I had to have it. He gave me an answer. You need to carry on and help people to understand this disease. Care and compassion. Visit the chronically ill people who have no hope, and show them that there is hope, that God will return for them, and take away their pain, once and for all. Thank you for listening to my story. If I could say one thing that would help you to tell others who suffer with this disease, I would say tell them you can’t imagine having the pain we suffer. Tell them you care, and you love them.
Bless all of you who suffer from RSD, and other chronic pain diseases. May the good Lord grant you the ability to help yourselves and others.
Love and peace,
Sylvia Marie Brown
RSD Support Group Advisor
- Author name:
- Sylvia
- Discussion:
- No Comments
I have been living with chronic pain for about 3 years now because of a hip condition that the Doctors will not treat because they say I am too young. My pain on a daily basis is always an 8 or more and its being treated by prescription narcotics that I have to rely on someone else to get for me because of lack of Medical insurance or a doctor willing to help. I just recently found a doctor that is going to do the surgery and states that the damage from waiting so long might be permanent and irreversible, nerve damage that might cause paralysis. I truly in my life cannot say that there is one person that understands exactly what I am going through on a day to day basis, realizes the extent of my pain and even believes that I am actually going though what I am saying that I am. I do not feel like I can trust anyone’s judgment of me at this point and am really tired of the gossip and innuendos not to mention the guilt some have made me feel because of not being able to be me more. I am so very tired of hearing “Just think positive and you will have a good day” or “Maybe if you did not think about it so much it would not be as bad” and the all time favorite “Don’t worry it will all be over with sooner than you think” I cannot do anything I used to be able to do anymore and people are not understanding that and are actually getting mad because of it. I just wish I could get someone to finally understand and know what I am going through to feel my pain.
- Author name:
- guest
- Discussion:
- No Comments
I had an injection 5 days ago. Right after the procedure I felt dizzy like I was going to pass out and had trouble speaking. Nurse said it was normal. I went home and rested and ever since that day I have been wiped out with fatigue! I have a thyroid issue which I am on meds for and was fine before injection! Now this debilitating fatigue and not one doctor wants to admit this has been a reaction to the injection. I don’t know whats worse the pain before or fatigue now? I also have not seen any relief! Has anyone else experienced fatigue and what was the cause? Also how long before I see relief? Thanks!
- Author name:
- kelly
- Discussion:
- No Comments
As a child had massive migraine headaches at age 3 which continued into adulthood until I had my child. Also from age of about 8 had start of problems with cystitis of the urinary bladder and a sometimes a distant ache in the kidney area. Kidney infections began in my early 20′s.
In 1991 had a sudden bleed (urinary) and went to the doctor saying that thought I had a stone. She replied that it was not possible as I would not be standing in front of her. Two days later woke up in trauma and stabbing pain and colic and this started a saga of explorations. Finally they decided to laser the small stone and was only supposed to be day surgery and out. The stone was smashed into a zillion pieces and must have back flushed somewhere as nothing was recovered and oh ya a hole had been blasted through the ureter and having had excessive IVP dyes left me after with full body hives. Was in hospital for about 9 days.
On going back for a check-up we got the “shuffle off to Buffalo” routine. What followed from the hospital was a low grade bladder infection so they thought which eventually went to both kidneys. I spent 2weeks in another hospital. The urine output was the color of rootbeer and was dehydrated. When I got out of hospital I immediately started a large massive daily dose of Natural Vitamin E to quell the Scar tissue in the left ureter and measured my magnesium intake in food in relation to calcium and then supplemented the shortfall. The urologist was pleased and I was given a bill of health or so I thought until it started again and then was in the process of going to Hospital after Hospital to explore the problem. All the doctor’s looked at their feet and not at me. I was getting used to it.
The hives continued until I went to a Homeopath who told me to stay off dietary added salt and helped me to straighten out my PH though still break out in a hive here and there. A few years ago I had severe case of hives than appeared as thought I had been lashed with a whip and they appeared in my throat and had to triple up on anti-histamines to get through the night. Meanwhile the kidney condition got much worse and began having torture chamber like pain episodes that were accompanied by invisible knives stabbing me in the kidneys and massive colic and not able to keep down gravol or the pain med. Then shortly after I started to bleed out clumps of blood and tissue. Finally made to a Nephrologist who by checking every avenue diagnosed me with LPHS which sounded to me after his explanation as a living death sentence of indescribable pain constant and with interloping ramped up episodes. Having a well earned diploma as a Natural Health Consultant though not able to work or put up a shingle; it does help me in using supplements along with other resources that have helped somewhat and even a little in the myriad world of pain that counts for something, huh. The evidence of bleeding is not there now though the pain has ramped up since and even though I monitor my pain and try to build my pain tolerance level it’s so difficult as the nature of the pain keeps changing as though it has it’s own personality. Now I’m getting bladder/pelvic pain along with ureter and front and back kidney pain both sides and lately have had no relief from the pain medications unless I double or triple the medication so most of the time I go without as much as possible, as I cannot take other pain medications due to allergies. Tried the pain clinic gig though that made me worse as cannot tolerate steroids and the pain was like something out of a horror movie.
I do whatever I can to keep mind of my nutrition needs though it can be a struggle. Run the road of being well hydrated when pain is a the simmering level and dehydrated the rest of the time as the pain is on the boil most of the time. Would appreciate any help or encouragement and hope I have helped someone to know that they are not alone.
Thank you and Take Care
glenna or multiplicity hall
- Author name:
- glenna
- Discussion:
- No Comments