Post a comment 3 Years with LPHS and now pregnant
My name is Katie and I have been dealing with LPHS for 3 years now. I have been to several large hospitals in the central Pennsylvania area where most doctors seem sympathetic at first and then dismiss me after they realize they have no answers. I don’t understand why none of them ever research it or look into doing treatment options even if they never have before. Most of these hospitals are teaching hospitals and you would think they would grab onto a new disease to research, but apparently not.
I am now 10 weeks pregnant and the pain has been increasingly worse sine I’ve been pregnant. But now doctors are even more reluctant to prescribe me medications for pain and even when they do it is a lower dose or less pills. I want nothing more than a healthy baby and don’t want to risk hurting it with meds but at the same time I can’t function in this much pain! I have to take days off of work just to sit on the couch which doesn’t even help all the time. I’m still in severe pain when I stay still or sleep anymore!
Has anyone else gone through pregnancy with this syndrome before? And what were your experiences if so? I am literally dying to find someone to help me and am at the end of my patience trying to figure this out. Please post or email me if you have any advice. Thanks and good luck to all who have this nightmare!
Katie
The scariest pain shot in my life
Hi my name is Renee I was hit as a pedestrian when I was 39 years old. Told I would be fine went back to work after 2 weeks…..
Mean while my spine which was fractured, continued to worsen….. 1.5 years latter I was told that I had fibromyalgia. A year after that they said I had Arthritis/bulging disks herniated disk stenous. Facet joint syndrome, etc this is entire length of spine.
I went to get epidural for my neck which I have had 4 times before, he couldn’t get in to epidural muscle. so he started to jam in. If that wasn’t bad enough he moved down to lower part of my neck when he did this he struggled, but got in, he hit nerve root for my left arm, my whole arm flew up in the air and started to shake. I had a feeling of a million bee stings, this was horrible;;; I will not attempt this again. I don’t know if any damage at this point, but have been looking for any other post where this happened it was truly traumatic.
Please respond if anyone has had this happen.
~ LPHS ~
Hi , I dont know if this is posted properly but we will see . My name is Erin Walter. Im 19 and from New Zealand. I have suffered with LPHS for five years now .
Ever Have A Bad Epidural?
I’ll try an make this as short as I can. I was receiving a lumbar epidural steroid injection. I’ve had three different kinds of pain shots over the years – so I know what to expect.
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my so called life
I am a 34 year old married mum of 3 children. I have suffered depression and pain for as long as i can remember. About six months ago i was finally diagnosed with fibromyalgia. I honestly wish i still didnt have a name to put to my condition. It’s like i’ve hit a brick wall i know what is wrong with me but none of my health workers can give me any advice on how to manage.
LPHS…. my story from London
Hi,
I am in London, England and this has hit me too. On June 6th last year I had an episode of frank haematuria and went to hospital, they suspected a stone but after many tests and a ureteroscopy, I was diagnosed with LPHS and sent home with painkillers…practically written off.
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WA – Washington Center for Pain Management
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http://washingtonpain.com
Phone: (425) 774-1538
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Denice
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I'm a 55-year-old disabled baby-booming woman living in MESSachusetts (don't ask). I live in chronic and constant excruciating pain from four ruptured herniated discs in my neck and one in my lower back.
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