I to have had the shots in my back, on the fifth one knew something went wrong body jumped with pain and head hurt so bad, doctor started yelling for stuff from nurse kept asking if I was ok but never said anything happened, after a couple of months legs started hurting so bad I couldn’t stand to walk in the morning and legs hurt so bad all night. Well after I kept saying my legs hurt he said, you know I wake up thinking of back surgery that is what I do, don’t think I can help you anymore and sent me on my way stopping my pain meds. Finally went to my reg doctor and got back on pain meds. It is horrible trying to sleep at night, legs hurt so bad now when they didn’t before the shot. I have burning, tingling, numbness, twitching, bad pain and sensitivity to touch all on count of shots, still on pain meds, but wish now I would never had done them. So painful to walk most days and sleeping all night, I hate it. Doctor keeps trying new meds to help with twitching and pain at night, I need relief.
The DEA had asked FDA to recommend the Schedule II reclassification that would limit refills to a 90-day supply instead of the current five refills within six months, because of the potential for abuse.
“The restrictions may make it tougher for pain patients. In some states, nurse practitioners can’t write prescriptions for Schedule II drugs and many doctors aren’t willing to prescribe anything stronger than Schedule III”, said Edward Michna, assistant professor at Harvard Medical School, and director of the Pain Trials Center at Brigham and Women’s Hospital in Chestnut Hill, Massachusetts.
And just for comparison, cannabis a Schedule I substance.
[Wikipedia] Hydrocodone/paracetamol (also known as hydrocodone/acetaminophen, hydrocodone/APAP or under brand names such as Lortab, Norco or Vicodin) is a combination narcotic analgesic drug consisting of hydrocodone and paracetamol (acetaminophen) used to relieve moderate to severe pain.
I suffered from depression almost my whole life (still do). Every medication tried or combination did not help. I was put on Seroquel (a “newer”) for “mood control”. For 10 years I drifted from treater to treater, each one simply re-writing more refills for Seroquel. Once in a while someone might notice involuntary jaw movements and casually prescribe Cogentin. But nothing changed and I was soon seeing another provider. After 1O years and 80 pounds heavier I decided to stop the Seroquel myself. Exactly 3 months later the movements started. My head constantly tilted to the left and was always moving. The pain got worse and worse as the symptoms did. However, I was one of the lucky ones. Right away I went to a local neurologist who said it was Tardive Dyskenesia and referred me to the movement center in one of our many hospitals in Boston. They diagnosed it as dystonia after just 1 appointment. Some people are surprised that Seroquel would cause this life-long condition. It wasn’t on the list of the “worse” meds. But I am living proof and whenever I come in contact with someone taking it or any other neuroleptic I give them my strong warning.
Hey, when I left school in 2009 I wanted to help my country, I was a really sporty and fit girl. Spent all my free time surfing. Joined the navy which i trained myself fitness wise a year before I went to base to start the training. The exercise was full on but I could handle it.
After two weeks I experienced burning pain and swelling and tingling in the sides of my legs. I was told it was just shin splints from the heavy boots.
Two weeks later the pain got so bad I knew something was so wrong. I triwd to explain it to a high up level of command. He punished me with a long run because he thought I was being soft. During the run I collapsed. My legs just didn’t want to work anymore.
I was taken to the navy hospital few weeks later diagnosed with bilateral compartment syndrome in both legs. My pressures were so bad and stopping blood flow I needed the surgery to release the pressure. 4 months laterbi finally was taken for surgery.
I was told id be fine after a long recovery. I was medically discharged. Ever since I have suffered with chronic pain. Same place and same feeling as before. I had the pressures re tested and was told they were fine.
Now every day I have to deal with this horrible pain and know one can tell me what it is!. I believe its nerves but who knows. I dont want anyone feeling sorry for me. I just hoped if anyone out there is going through exactly the same thing. Please talk to me.
Female, 55, married, 3 children, 3 granchildren, teacher at a school for children with a learning or behaviour disorder. Dutch, living in Noordwijk in the Netherlands. Diagnosted with LPHS in 2005 at the LUMC, Academic hospital. My english is not the best, but I am trying. I have a very good kidney specialist and he was very quick with his diagnose. I have a specialist at a special pain departement of the hospital and I have mental coaching. Two years ago I even followed EMDR therapy. At the moment I have just heard that I can not work anymore being told I am disabled now by LPHS. I use a lot of pain medicines
( cymbalta, Lyrica, Oxycontin and oxynorm )
I fell getting my mail which my mailbox is located in the streets. The snow plow company didnt plow close enough to mailboxes which unbenounced to me caused me to lean forward and come off my toes, when I went to slowly push back and gain my footing, I turned, lost my balance, lost my footing and down I went. Thinking it was just an oops slip and fall.
Twenty min later I felt the most unbelievable pain in my lower back and down my right leg that I have ever felt….to the E.R..xrays, pain shots and meds and sent home. A couple days of excruciating pain sent me back to E.R. With the same repeat. Five days after fall to a back surgeon who immediately admitted me to the hospital.
Test after test and a steriod epidural with no relief. Surgery was inevitable. I had a lamenectomy and a jammed, bruised nerve was discovered and repaired along with a degenerative L4 was repaired, but the L4 was not my issues.
Finally relieved of the excruitating pain, I thought now the healing process will begin and i will be ok. Not knowing my life was bout to take a downward spiral effect that would change my life forever.
When I fell, I was a street patrol police officer for over 14 yrs and I passionately love my job more than anyone could possibly imagine. Five months after surgery, I returned to work still with pain and being told by doc that it will take a long, long time to heal.
Well I worked the streets wearing a 16 lb gunbelt and entire uniform and gunbelt weighing over 25 lbs coupled with the twenty lbs I had gained from laying on my back, recovering was hard, but with pain meds and p.t. And docs assuring me that my spine was perfect that I should be ok. But they couldnt explain my pain.
Over a course of two yrs with several steriod epidurals, physical therapy, numerous different pain meds that didnt work, also on Cymbalta, Lyrica, and Gabapentin which all made me sick. Then diagnosed with bursitis of right shoulder, osteoarthritissacriliitis of left S/I jpint, and severe scar tissue built up under surgery site.
I know have chronic lower back pain, charlie horses in my legs like twinkling christmas tree lights, numbness and tingling in my feet and toes, along with constant S/I joint pain. I’m told by doctors there is nothing they can do for me, to hang up my gunbelt and take a desk job and see a counselor for trying to deal with the fact that the career which I love, lived for, and always dreamed of doing will inevitably be no longer. But the thought of that I could not bare because I love being a Police Officer.
So I fought the idea of a desk job and im still fighting. Again off work on a FMLA in attempt to go hard on physical therapy, lose the back weight I gained, and do another series of steroid epidurals. I could fight this, win, and go back to what I Live doing more than anything in the world.
P.T. and neuromuscular massages seemed to be helping, but a slow, slow process. After eight neuromuscular massages, the therapists had seemed to minimize my charlie horses in my legs, and the numbness/tingling in my feet/toes. Then I was told the insurance co would only pay for 8 neuromuscular massages and slowly the charlie horses in my legs came back.
Dec 2012 I had one steriod epidural which helped slightly. Jan 2013 I had my second which again, helped so ever slightly, but at this point, I will take whatever so slighty pain relief I could get. Then on Feb 20, 2013 I had my final third steriod epidural of my series. I slept all day after that making sure I stayed in bed. The second day, I was very sore at the injection site which was normal in the past. Then as the second day went on, I vomited, still thinking nothing of it, believing I possibly had not eaten enough with my pain meds that caused me to be sick as the day went on. I began to get a violent headache still thinking that it was I had not drank enough water, I took my Motrin 600 and tried to sleep off, my headache.
Going into the third day after my epidural, I woke still sore at injection site, but my headache was gone feeling pretty good, so i did some lite laundry trying to move about as to not get to sore from laying in bed, then by early evening, my lower back was excruciating, I was nausish, and a headache started again. Fearing something was terribly wrong, my fiance rushed me to the E.R., they loaded me up with pain meds and I.V. fluids to ease the back pain and my violent headache. Then the doc told me that my spinal sac had been punctured by the epidural needle causing spinal fluid to leak.
I was released, told to bed rest for few ays, drink plenty of caffiene to help subside the headache, take my regular pain meds as prescribed, and if the severe pain and headaches do not subside, to return to the E.R. for a blood patch, where they would remove blood from my arm and inject it in my spine near the injectionsite to cause a hematoma to stop the spinal flyid from leaking.
Buy the time I had got home from the hospital, I vomitted every ounce of fluid I drank. thinking it was from all the pain meds I had received in the hospital, I stopped drinking so I wouldnt vomit, and went to sleep. Day four, I woke late afternoon, still sore in lower back and a faint headache. I decided to stay in bed praying the spinal fluids stop leaking, because if you dont lay on back in bed and stand up, the spinal fluids leak, you will get naushish, and possibly vomit and the headache will get worse. Because I do not, if I dont have too, want another needle put into my back after what I just went thru with this bad experience of this steriod epidural that caused my spinal fluids to leak and causing my severe pain, vomiting, and violent headache.
So with that being said….I dont think iI will ever do another epidural after what I just experienced…as though I have not been thru enough pain thru these two long years of chronic pain and the docs say there is nothing else they can do, but also suggested a spinal cord stimulator placed inside my back which constanly releases pain meds. But right now, thats not an option, that is their solution. Me only being 44 yrs old, I’m too young too go that drastic this early and it will surely end my Police career. So all I have now is a whole lot of praying, physical therapy, pain management, hoping someday I will get better, the pain will ease up, and I will get back into my uniform, get back to my life which has been so drastically altered by my fall.
Will I ever do another elidural?..Hecky NO….am I confident I will ever get better? Not sure, but I have not given up faith….but I am starting to lose faith in the doctors who have so quickly given up on me and didnt hesitate to tell me to hang up my gunbelt and just deal with it…well I’m not settling for that…..I have not given up yet….sorry this was typed from a phone a hard to proof read…thank you for reading my story…God Bless you all…and good luck with your back issues..
Amazing that not one doctor has fessed up to this procedure and the bad result that I experienced. Numbness in fingertips for well over a year but only two weeks after the carpal tunnel surgery do I find these websites that prove what i have been saying all along. I have been frantically searching for explanations from countless doctors and legal experts without any luck until now. I may have opted not to undergo the carpal surgery had I known about this and been dealt with honestly. I was at my wits end and would have tried anything to get my fingers back. The epidural was intended to relieve pain caused by an auto injury. I experienced an adverse reaction during the procedure. The assistants reaction to my appearance following the procedure was Oh my God. I immediately began complaining of numbness in my fingers and was told that it was carpal tunnel. You know your body and I knew this was not the case. The fingertips minus the pinky went completely numb and have not recovered. I will now pray and seek justice in this heavy trial. Merry Xmas and be assured that the Lord is my shepherd. Praise honor and glory to Him for leading me to this information.
I’ve had back trouble off and on for many years. It finally become out of control within the last year. I know how stupid this sounds, but I thought I was dealing with arthritis. Yes, I saw three idiot “medical students,” “physician’s assistants,” and finally saw a doctor who immediately wanted to do a fusion. I declined and went somewhere else. My brother had the surgery while still in his thirties. It failed, he became a Demerol addict — and died of an over dose three years ago.
As it turns out, I have two herniated discs between L3-L4, L4-L5. I guess just being chubby and older was enough for this injury.
I went to another facility and had three injections. The first two were a complete failure. I had the third almost two weeks ago. I was improving…until I did a few chores that required me to do a bit of bending. Now my leg muscles are so sore I can hardly move AND the back pain returned in spades.
I’m upset, discouraged and am about ready to get a scooter and get it over with.
Hey Guys, My name Is Gabe, I’m a 16 male from Pennsylvania. I was diagnosed with Loin Pain Hemoturria Syndrome about 2 months ago. It all started last November when I started having the worst lower back pain in the world. It was the worst pain I had ever felt. I told my mom about it thinking it was nothing so we let it go. After about 2 months of this I went to an Orthopedic doctor who thought I had a hairline fracture in my spine somewhere. I got a bone scan along with several other texts for the Orthopedic’s. Unfortunately I had no bone damage. After that appointment trying to figure out what to do next I started urinating dark brown, that night i was checked into the ER. I got to leave that night diagnosed with an UTI, wrong again. Then we were referred to an Urologist. By now it was about March or April, the entire time i had been in daily pain with no pills giving me any relief. The urologist then sent me to the nephrologist . Our first appointment she scheduled tests for me and sent me to the Chronic Pain Clinic in my area. The doc gave me a steroid injection of some kind. All it did is put me in worse pain. He sent me on my way until 2 weeks later. By now I had gotten annoyed because it wasn’t until late May that I got an appointment to see the nephrologist again . I had several tests done by her, one involving them putting a catheter down my neck to check the pressure levels on both sides of my back/ kidneys. That was the first test that had showed any indication there was something actually wrong with me. My doctor then called me back in to tell me the news. I then found out I had LPHS, I had no idea what that meant, and I didn’t care. She said she would talk to a cardiovascular Surgeon and give me a call back when she had everything figured out. By now it was about Early July. Between this time i had been given Vicodin and that did nothing for me, some sort of a muscle relaxer, and Tramadol. Soccer season was coming up my appointment with the surgeon was for late August, another month of waiting. Shortly before the appointment the Chronic Pain doctor gave me an anti-seizure medication called Gabapentin, apparently it was supposed to work. All that did was put me in a very bad mood. I had stopped taking it and I was just waiting for my appointment with the cardiovascular surgeon. The day came and I met with Doctor. Atnip of Hershey Medical Center, apparently this guy was one of the best. When I got there a resident nurse came in fascinated asking me so many questions about LPHS, it was like I was a science marvel. Then Doctor Atnip finally came in with another resident who just stared at me in awe. Then he told me all my options to possibly fix this, waiting was the first thing he said. Which was not an option for me. After just a year of this i had worn on me so much and I just need it to be done. He talked to me about doing some sort of bi-pas by taking part of a vein from my leg and bi passing the compressed vein of leaving my kidney. He was against putting a stent in the vein that needed to be fixed. So as of today September 18th I just got a vein mapping done to see if my veins would even work for the surgery. When the nurse said they would I felt some hope finally. Now Doctor. Atnip had talked to my nephrologist and they both feel this is the best option, and apparently due to my body weight and type this surgery had a good chance of success. After reading up on LPHS a bit i discovered what other patients were taking to manage pain, so on the 20th i have another pain appointment, hopefully to actually get something that works. The only thing that worries me is it seems like no one actually gets rid of this or fixes this. But I’m hoping for the best. If anyone has any advice of surgical experience, pain advice, anything i would be more than happy to hear.
I had my first two injections today and I can’t believe how good I feel. The injections did not hurt however I felt pressure. I have a severe case of this and it affects my L2 and L3. I also started on Mopic about ten days ago only 15 mgs. a day it took seven days to kick in and I became pain free. My pain was only in my left buttocks. So with that being said I’m hoping I can get back to my busy life, whick includes being a almost sixty year old woman who is licensed to teach Zumba and should have been started by now, but this was in the way. Good luck to all. Donna
I had an allergic reaction to the pertussis vaccine at 6 months. I am convinced my father also had a reaction to vaccines possible Polio. He had to wear braces on his legs.
I grew up and suspect I was treated with antibiotics when I had Viral infections and possible autoimmune disease. My high fevers and infections were multiple times during the year but always during the spring to summer, and Fall to winter.
I had Severe mood issues at home as a child and well behaved at school. I had pain I remember well and when my parents stopped spanking me. I began to hurt myself physically in the places on my body where the pain was. My Arms and legs and managed to hide it for years.
I was given a diagnosis of bipolar and then after treatment for years started having allergic reactions to antihistamines and then my medication which rendered me useless as I could not stop moving and had nerve pain in my legs and arms and had severe gag reflex and what is Parkinson like symptoms.
The pain never ended after that and now they think I am insulin resistant. and my thyroid overworks to keep me from gaining weight and lead to over a hundred pound weight loss.
All I can say for myself and other people is that it is easier for them to believe in miracles of God they can not see than a virus, germs and nerves or cells in the body. So We carry on knowing that no matter what they will not know or acknowledge what they fear. Many fear illness and pain. What is special about the people who face it every day is that we are a gift. And we can have compassion and insight to things others are simply blind to and face terrible odds with incredible faith and strength.
Education is key and ignorance is the enemy. I use my breathing and constant spiritual practice of letting go and accepting this at the same time. If we can find peace in suffering. We have something that is a great gift. This is our great thing. To give to others an example of expression and this. As well as hard times to come and go is invaluable. It can not be sold or bought and it can not come with a fight. It comes with acceptance and surrender. It is the only break we may get. Just knowing people are only conditional to love and understanding is helpful. We must reach and accept a gift no one can know or see but what we can feel and only we can work with.