Post a comment

3 Years with LPHS and now pregnant

Posted by Katie on Aug 19, 2010 in LPHS

My name is Katie and I have been dealing with LPHS for 3 years now. I have been to several large hospitals in the central Pennsylvania area where most doctors seem sympathetic at first and then dismiss me after they realize they have no answers. I don’t understand why none of them ever research it or look into doing treatment options even if they never have before. Most of these hospitals are teaching hospitals and you would think they would grab onto a new disease to research, but apparently not.

I am now 10 weeks pregnant and the pain has been increasingly worse sine I’ve been pregnant. But now doctors are even more reluctant to prescribe me medications for pain and even when they do it is a lower dose or less pills. I want nothing more than a healthy baby and don’t want to risk hurting it with meds but at the same time I can’t function in this much pain! I have to take days off of work just to sit on the couch which doesn’t even help all the time. I’m still in severe pain when I stay still or sleep anymore!

Has anyone else gone through pregnancy with this syndrome before? And what were your experiences if so? I am literally dying to find someone to help me and am at the end of my patience trying to figure this out. Please post or email me if you have any advice. Thanks and good luck to all who have this nightmare!

Katie

Tags: ,

 
Post a comment

The scariest pain shot in my life

Posted by Renee on Aug 11, 2010 in Personal Story

Hi my name is Renee I was hit as a pedestrian when I was 39 years old. Told I would be fine went back to work after 2 weeks…..

Mean while my spine which was fractured, continued to worsen….. 1.5 years latter I was told that I had fibromyalgia. A year after that they said I had Arthritis/bulging disks herniated disk stenous. Facet joint syndrome, etc this is entire length of spine.

I went to get epidural for my neck which I have had 4 times before, he couldn’t get in to epidural muscle. so he started to jam in. If that wasn’t bad enough he moved down to lower part of my neck when he did this he struggled, but got in, he hit nerve root for my left arm, my whole arm flew up in the air and started to shake. I had a feeling of a million bee stings, this was horrible;;; I will not attempt this again. I don’t know if any damage at this point, but have been looking for any other post where this happened it was truly traumatic.

Please respond if anyone has had this happen.

Tags: , , , , ,



 
Post a comment

~ LPHS ~

Posted by dragonfly1693 on Jun 15, 2010 in Personal Story

Hi , I dont know if this is posted properly but we will see . My name is Erin Walter. Im 19 and from New Zealand. I have suffered with LPHS for five years now .

Tags: , , , , ,

 
2 Comments

Ever Have A Bad Epidural?

Posted by Abbie on May 15, 2010 in Personal Story, Treatments

I’ll try an make this as short as I can. I was receiving a lumbar epidural steroid injection. I’ve had three different kinds of pain shots over the years – so I know what to expect.

Tags: , ,

 
Post a comment

Marijuana Policy Discussion

Posted by rrollins on Mar 11, 2010 in News

Douglas Hiatt, Seattle criminal defense attorney and co-author of I-1068, joined several other local experts to discuss marijuana legal reform at Seattle Town Hall. The community discussion aired live on Seattle Channel and featured audience participation. Several I-1068 volunteers spoke …

Tags: ,

 
1 Comment

my so called life

Posted by floojo on Mar 7, 2010 in Personal Story

I am a 34 year old married mum of 3 children. I have suffered depression and pain for as long as i can remember. About six months ago i was finally diagnosed with fibromyalgia. I honestly wish i still didnt have a name to put to my condition. It’s like i’ve hit a brick wall i know what is wrong with me but none of my health workers can give me any advice on how to manage.

Tags:

 
1 Comment

LPHS…. my story from London

Posted by annie on Mar 3, 2010 in Personal Story

Hi,

I am in London, England and this has hit me too. On June 6th last year I had an episode of frank haematuria and went to hospital, they suspected a stone but after many tests and a ureteroscopy, I was diagnosed with LPHS and sent home with painkillers…practically written off.

Tags: , , , ,

 
Post a comment

MD – Ava Mina Pain Treatment Clinic

Posted by Nadia on Feb 9, 2010 in Pain clinics

Ava Mina Pain Treatment Clinic
Ste 206, 2360 West Joppa Road,
Lutherville Timonium, MD 21093-4664
(410) 583-2911‎

Dr. Sherif Meleka

Tags:

 
Post a comment

MD – Pain Treatment Center

Posted by Nadia on Feb 9, 2010 in Pain clinics

Bethesda Naval Hospital
8218 Wisconsin Avenue, Bethesda, MD 20814
(301) 263-8000‎

Tags:

 
Post a comment

WA – Washington Center for Pain Management

Posted by Nadia on Feb 9, 2010 in Pain clinics

Washington Center for Pain Management
http://washingtonpain.com

Phone: (425) 774-1538

Edmonds, WA
21616 76th Avenue West
Suite 104
Edmonds, WA 98026

Bellevue, WA
14670 NE 8th Street
Suite 105
Bellevue, WA 98007

Renton, WA
17800 Talbot Road South
Suite 103
Renton, WA 98055

Tags:

Development donated by Conyred.com

Performance Optimization WordPress Plugins by W3 EDGE