I just found this website just recently and I think talking to people that have pain just like I do and understand the way I’m feeling will empower me. I was just diagnosed with LPHS in October after about a 1 and a 1/2 of not knowing what was happening. Kidney stones were what started the process off and I had several procedures for that and some spinal injections to try to alleviate the pain but it didn’t work. I have some good and bad days but mostly bad days. I still go to school and next year I’m hoping to go off to college but I don’t know what to do because I can barely function at home. I miss almost 2 days in a 5 day week at school and I already am allowed to go in late for school. I had to quit my job that I loved so much when this all started. And I have lost about all of my friends now because I can’t go out and I’m in so much pain. Also my parents don’t understand what I’m feeling and they can’t deal with this any longer it seems like. My boyfriend of almost 2 years is trying his hardest to understand and he is amazing but I know he can’t take all of this all by himself. It’s hard to talk to someone who truly doesn’t understand the pain I’m going through.
Some of the doctors I saw told me I’m crazy. And I know that I’m not! Does anyone have some answers for me? If you don’t want to talk in front of everyone else then email me at firstname.lastname@example.org please.