23 years old and uncurable

hi i’ve been on this website for around 3 years and i have made some great friends who understand what i’m going throught. i have had LPHS for 6 years now and am still uncurable. if anyone wants to ask any questions feel free to email me. its totaly_tweety@hotmail.com. . i also want to tell people about a fanatastic doctor who is helping my surgeons even tho he lives in ohio and i’m in scotland. his name is dr herbert and he is at ohio uni in research. if your doctors are sturggling to help as there is very little info on LPHS he will send a wealth of info that has helped me i’m still in pain but At least it helps a bit much better than having opium based drugs which slowly kill you i’m still on them but at a lower dose with some new tablets and also a THC (the active ingredient in cannabis) nasalspray!

i just want to say i have made some fantastic friends here.
again feel free to contact me

Kirsteen

3 thoughts on “23 years old and uncurable”

  1. I would like to know if you could send me the name and contact information for the doctor in Ohio who helped you. I am in the US and although a doctor here agreed that I have LPHS, I basically handed him the diagnosis, having researched it online and been in pain for many years without anyone being able to tell me what was wrong. Doctors have ignored me, blown me off, etc. A nephrologist at the Univ. of Pennsylvania agreed to the diagnosis, but basically said it was no big deal, that it wasn’t really even considered a real disease by most doctors and that there wasn’t much anyone could do about it. I thought that having a diagnosis would go a long way in helping me become pain free, but was horrified to find out that I’m in the same position: being told I’m making a mountain out of a mole hill! Any info you can give me would be terrific. Thanks so much and good luck to you:)

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