Since he was about 14 years old we have been trying to find out what is wrong with our son. He is now 18 years old and we have finally found out what is wrong. He is an athlete and favorite sport is football. He has been living with this severe, chronic pain for soo long. Many nights i cry myself to sleep with worry. Right now we have not found relief. Ultram will sometimes help with the pain but not always. Our nephrologist is sending us to Dallas to see a doctor with more experience with this syndrome. I can only pray that we have some luck and find a way to end my son’s constant agonizing pain. Any suggestions on dealing with this chronic disorder would be very appreciated.