Category Archives: Resources

Shot went wrong

I to have had the shots in my back, on the fifth one knew something went wrong body jumped with pain and head hurt so bad, doctor started yelling for stuff from nurse kept asking if I was ok but never said anything happened, after a couple of months legs started hurting so bad I couldn’t stand to walk in the morning and legs hurt so bad all night. Well after I kept saying my legs hurt he said, you know I wake up thinking of back surgery that is what I do, don’t think I can help you anymore and sent me on my way stopping my pain meds. Finally went to my reg doctor and got back on pain meds. It is horrible trying to sleep at night, legs hurt so bad now when they didn’t before the shot. I have burning, tingling, numbness, twitching, bad pain and sensitivity to touch all on count of shots, still on pain meds, but wish now I would never had done them. So painful to walk most days and sleeping all night, I hate it. Doctor keeps trying new meds to help with twitching and pain at night, I need relief.

Proposed Reclassification of Hydrocodone as a Schedule II substance

The DEA had asked FDA to recommend the Schedule II reclassification that would limit refills to a 90-day supply instead of the current five refills within six months, because of the potential for abuse.

“The restrictions may make it tougher for pain patients. In some states, nurse practitioners can’t write prescriptions for Schedule II drugs and many doctors aren’t willing to prescribe anything stronger than Schedule III”, said Edward Michna, assistant professor at Harvard Medical School, and director of the Pain Trials Center at Brigham and Women’s Hospital in Chestnut Hill, Massachusetts.

And just for comparison, cannabis a Schedule I substance.

[Wikipedia] Hydrocodone/paracetamol (also known as hydrocodone/acetaminophen, hydrocodone/APAP or under brand names such as Lortab, Norco or Vicodin) is a combination narcotic analgesic drug consisting of hydrocodone and paracetamol (acetaminophen) used to relieve moderate to severe pain.

Spinal Stenosis

I had my first two injections today and I can’t believe how good I feel. The injections did not hurt however I felt pressure. I have a severe case of this and it affects my L2 and L3. I also started on Mopic about ten days ago only 15 mgs. a day it took seven days to kick in and I became pain free. My pain was only in my left buttocks. So with that being said I’m hoping I can get back to my busy life, whick includes being a almost sixty year old woman who is licensed to teach Zumba and should have been started by now, but this was in the way. Good luck to all. Donna

My mom’s pain

For the last 7 years or so my mom has been living with chronic pain. She has always done a lot physically and could never sit still. After emptying out my Grandmother’s house, the pain got worse… she has tried every pain pill and received a marijuana medical card… nothing has worked… and many pills did more harm. Several doctor’s told her it was in her head… a few others said she needed back surgery which she had on her L5 S1 which made it even worse.

She has just tried this nerve stimulator and it seems to be working… thank God… she said if it didn’t she couldn’t live with the pain any longer.

She is going back tomorrow to have the temporary one removed then have the permanant one put in….so far….so good…..we all pray this works!

Most Helpful Treatments

For most of my years with Loin Pain Hematuria I kept ending up in the hospital because of uncontrolled pain. I was probably prescribed every narcotic possible … tried many different types both pills and patches. It was not until my regional hospital started a subcutanous IV lidocaine pain program , combined with methadone that I finally found life manageable three years ago. Lidocaine is used to treat many different types of pain. Every person is different. Some can stop using narcotics, others can reduce their amounts. For me it meant that I stopped using short-acting narcotics on a regular basis, instead only an infrequent as need basis. I am on 18mg of methadone. I was on 1080ml of lidocaine. I have been able to raise my 3 children. But ….. chronic pain is always a series of trade offs.

My hair has started to fall out and in the past 18 months I have been exhausted. The exhaustion is deep and debilitating. I have been working with my family doctor, naturopath, pharmacists, nurses at the pain program, ob/gyn, and dermatologist to figure out any answers. But my own research has proved to be very important. I have learned that lidocaine is being researched in cancer studies. It is an EGFR inhibitor. This is the same type of drug used in chemotherapy that causes hair loss. It works on very basic cellular production. Then I found out that methadone is more effective than other narcotics because it works on all 3 pain receptors, rather than just 2 two. But it will cause chronic adrenal fatigue, hence the exhaustion. Working with my naturopath, hopefully I can feel healthier again with supplements, nutrition and reductions in Rx dosages It is very important to use the Internet to research all medication recommended to you.

LPHS Journey

I am 47. My first signs of a problem was at age 19 with high blood pressure. Then at age 27 with blood in my urine thru-out my pregnancy. Next at age 33 at conception of my third pregnancy with a very dangerous bacterial strep infection and pain mostly in my back. Then at age 37 I had to have emergency surgery; my kidneys could not handle it. I got a kidney infection. And then all kinds of pain and blood in my urine. My blood pressure was out of control. A ureter stent was put in, but something went wrong because it caused agonizing pain. It was taken out. I required more surgery that found shards of the stent in my ureter. That relieved some acute pain, but I still had kidney pain and blood in urine. By the time I was dealing with the shards of the stent about 20 months of agonizing pain had occurred – I was ready to die. The only thing that stopped me was my three children. My mind could resolve that my husband would want me at peace, but I could not reconcile how my children could live without me. As I researched suicide methods I found 1 website for LPHS & a friendly voice in Ohio helped me. She connected me to doctors at Ohio State University. I also went to a teaching hospital in the largest city in my province. (Canada) The teaching hospital was a smart idea! This type of hospital loves hard to figure out medical problems. I finally got good care & thorough diagnosis + start of a pain management plan. I also went to Cleveland Clinic in Ohio because it is considered the #1 Urology & Nephrology Centre in the US. It cost $5000, but was worth it. When we add up all lost wages in/out of Cdn hospitals with out diagnosis, this was cheap. Now there is more knowledge about LPHS.

Praying for relief…..

I had my first shot yesterday. I hardly felt anything but a little pressure during the procedure. They gave me the local anesthesia hooked up to the back of my hand because my arm veins are hard to find. After applying something to freeze the back area, they did the procedure.

They monitored me for blood pressure and heart beat for maybe half an hour after wards. I said I feel fine…. with no adverse reaction. They released me.

I walked a ways out of the hospital to the underground parking structure and headed home. My sister drove me. I had left my car at her house and insisted I was fine to drive myself the 30 minutes to my home. I felt very good. I didn’t feel like I had medication in me. No drugged feeling at all. Just relief.

After a couple of hours at home, the pain medication wore off I felt the stiffness in my lower back that I have always had for years.

It is the next day now and I feel a big relief. Still a little stiffness, but no leg or buttock pain. I also have the L4 and L5 degeneration. Sciatica and leg weakness due to degeneration. I feel great today.

I had it done because the neurosurgeon said he didn’t see any surgery was needed.
I had trouble standing upright for more than a few minutes. I couldn’t walk a half a block without my legs becoming numb.

I honestly feel a little over 24 hours later like a new man. I am looking forward to getting back on the treadmill maybe tomorrow. I need to lose about 40 pounds.

They say to get and keep moving shortly after having it done. I will do whatever necessary to make this work.

Oh….did I tell you I am 67 years old?