All posts by Patti


Four years ago the nausea, commuting, erratic blood pressure, weight gain and blood on the toilet tissue started. My primary was wonderful but could only treat each symptom. I was already on 8 vicoden a day due to a serious neck injury so I don’t remember the flank pain. I had cystography but my doc was clueless. I did get treated for trigimonis and my symptoms suddenly stopped. I forgot all about it until about 6 months after my symptoms returned only this time much worse. The hospital I went to refused to give me pain pills or a neurology referral for a year and a half. The urology dept promised me a neurology referral if my cystography came back normal. Then when it did come back normal they refused the referral and told me to go to the emergency room. On a scale of 1-10my pain was consistently 12. When I told the nurse in urology that the pain was so bad I wanted to blow my head off they immediately sent the police, which is how I ended at the new hospital, cause once the cops heard what I’d been through they understood my pain. So I immediately got a neurology referral, pain meds and a diagnosis. Praise god, cause I almost lost my mind. I’m still totally in pain, bleeding everyday and sick to my stomach… But at least I know I’m not crazy. HELP ME START A RESEARCH PROJECT. Patti 619 992 2765