Well I wish I had better news. Unfortunately, I have now been diagnosed with LPHS of my native right kidney (Native because both my kidneys are on my right side because of an earlier autotransplant). I started showing symptoms about a year ago and they progressively got worse. I am now at the point that I am no longer able to live a “normal” life. Normal in the sense that I consider normal; pain everyday but manageable. I am no longer working due to the pain and I am having a very hard time trying to cope. The pain has not been very easy to control, when it is controlable. For the past 8 months, I have been not able to do much. I rarely feel up to doing anything because it excites the pain so much. My doctor’s are at a loss. I am still seeing my pain management doctor, who by the way has gone out of his way to help. He feels that if he keeps me stress free (Yeah Right! In these times) and calm the pain is more manageable. It is but I get these extreme pain attacks that just put me in a complete funk. I now see a nephrologist. Due to the years with LPHS and the treatments, I have been diagnosed with chronic kidney disease. It is only level 1 however if you look at my GFR, my right transplant is doing much better than my native right kidney. Now it is something else to keep an eye on. I have been put on blood pressure medicine to try to prolong the stages of CKD. Even though things are rough, I still try to maintain a positive attitude. Its hard but I know that in the end things will be fine because I will do everything I can to ensure my quality of life.
21 Years with LPHS (Aug 20, 2008)