Living with chronic pain

I have read many posts and just wanted to add a few of my own thoughts as I have been a cp patient for 16 years now. No one would ever choose to be a cp patient. Those of us with cp are constantly trying to make the best of it.

If you are like me you have learned to not talk about it…who wants to hear a person complain about their health issues? But in a way I think that back fires because then people just think that I am OK. (which is so far from the truth on some days-we are just always sucking it up, so you do not have to suffer with us.)

I am constantly not wanting to burden those around me and to try as I might to be helpful. To do this you have to be the strongest person I know-because despite how we feel, we see the need around us for people who are hurting or who are in need of love and nurturing and try to give back despite how much pain we are in.

I am constantly weighing my actions against pain thoughts of; will this action make my pain worse? Will this action push me over the edge, which brings on, an extremely high level of pain and then brings more thinking of how will I be able to get my intense pain back down to a low boil.

It is constantly weighing my actions and non-actions throughout the day-because I love you and I do not want your life to be worse-because of me.

Finally, it gets so old wearing a mask when being put in a situation to socialize. It is the hardest for me when we go visit family or they come visit us, because we have to be on and welcoming and as helpful as we can be…which is so draining when you are in so much pain. It all just wears a person out!

3 thoughts on “Living with chronic pain”

  1. I understand you so well, I am 15 years old and have been living with daily migraines for over a year and a half, many know me as a positive, happy person that loves to help out as much as I can but that is just a mask. Many just think I am faking the pain or don’t take me seriously, but it keeps getting harder, I feel alone and I agree with everything you said.

  2. I so know your pain. I’m 14 with an unknown disease that causes intense pain in my abdomen. I cant form a coherent thought in these episodes and it wears me down all day. To pretend I’m alright is false in every sense if the word. Im headed to Mayo and hope I find a way to maintain a normal life. I’m praying for you. Thanks for sharing your story

  3. I so know how you feel. I am a 14 year old boy trying to live with an unknown disease that gives me extreme episodes of pain in my abdomen. They’ve gotten so bad that I can’t form a coherent thought and either terribly. I no longer can maintain a normal life I want. I am a pretty talkative person and I find it harder every day to smile and laugh with my friends. I’m currently heading to Mayo Clinic in Minnesota and hope the end of my problems are there. Know that you are in my prayers and hope you do better.

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