My name is Ivy Goss. I am a 37 year old mother of 4.Recently I was diagnosed with a disease that is very uncommon; Loin pain-hematuria syndrome. Not much is known about this condition. There are no known cures. Once known as idiopathic hematuria, LPHS simply means you have blood in your urine, and pain in the kidneys and, or lower back, with no known explanation.
My mother and sister have the same symptoms, yet no diagnosis for the condition. They live in Pennsylvania. I live in Washington State.
Pain pills may be given to help make you more comfortable. In my opinion, this seems a lot like playing bare foot in a snowstorm when you have a common cold. Every pain pill offered to me has had an adverse effect on the kidneys or liver. Some of these pills have an addicting factor.
There have been days recently that my pain is at a disabling level. If not for the patience of both my employer, and fellow co-workers, unemployment would be likely.
My 16 year old daughter exhibits the same symptoms, blood with no infection; being the first sign that she may also have this disease. I am on a personal mission to discover what triggers this disease, and how to control the symptoms in a way that is not harmful to the future health of me and my daughter.
Meeting with a fitness trainer is at the top of my list. Diet and exercise will be the first avenue we explore.