Overwhelmed at 17.

I just found this website just recently and I think talking to people that have pain just like I do and understand the way I’m feeling will empower me. I was just diagnosed with LPHS in October after about a 1 and a 1/2 of not knowing what was happening. Kidney stones were what started the process off and I had several procedures for that and some spinal injections to try to alleviate the pain but it didn’t work. I have some good and bad days but mostly bad days. I still go to school and next year I’m hoping to go off to college but I don’t know what to do because I can barely function at home. I miss almost 2 days in a 5 day week at school and I already am allowed to go in late for school. I had to quit my job that I loved so much when this all started. And I have lost about all of my friends now because I can’t go out and I’m in so much pain. Also my parents don’t understand what I’m feeling and they can’t deal with this any longer it seems like. My boyfriend of almost 2 years is trying his hardest to understand and he is amazing but I know he can’t take all of this all by himself. It’s hard to talk to someone who truly doesn’t understand the pain I’m going through.

Some of the doctors I saw told me I’m crazy. And I know that I’m not! Does anyone have some answers for me? If you don’t want to talk in front of everyone else then email me at laurenrrunkle@yahoo.com please.
Thank youuu!!

5 thoughts on “Overwhelmed at 17.”

  1. First, let me say how sorry I am that you developed LPHS at such a young age. I’ve had it since I was 30, but wasn’t diagnosed until a few months ago. In the last few years, I’ve lost several jobs, my home, my wife and my dog (whom my wife put to sleep…’nother story, different time). Sounds like a country music song right? Well, I’ve finally found a little bit of hope and maybe it’s worth sharing…

    First, do you see a regular pain care physician? If so, nothing works better on this sort of pain than methadone for long term pain and dilaudid for breakthrough. I had been on those for years…but tend to puke them both back up. When they stayed down, they worked wonders.

    Second, if you do have a regular pain doc, ask about getting either a neurostimulator implant or an intrathecal pain pump implant. I had the neurostimulator for three years (until I burnt it out from using it too much). However, I still had to take the meds. I JUST got the pain pump implant a week ago and already I can tell the difference…riding in the car has become SOOO much easier!

    Finally, start walking. If you’re in a tolerable amount of pain, put on your ipod and hit the trails. Try to go every day. I’ve found this has helped tremendously.

    All that said, I still don’t do much because the pain is more or less constant. But as I’ve learned, learning to function is half the battle.

    If ANYONE cares to write me and discuss any of this or any new ideas, my name is Drew and my email is drew_bufalini@yahoo.com. I just found this site and am so happy there are others out there who know what I’m dealing with!

    Hope you feel a little better.

    P.S. Everyone I’ve talked to has told me to keep both kidneys….

  2. I started having symptoms at 20 I been through about 16 surgeries because of stones or experimental treatments. Would love to talk maybe share treatments you’ve tried or wht I’ve tried. Btw NEVER let a dr tell you your crazy they are only practicing medicine and they sure as he’ll don’t know everything. Hit me up on Facebook Jennifer Mary or email.

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