Most Helpful Treatments
For most of my years with Loin Pain Hematuria I kept ending up in the hospital because of uncontrolled pain. I was probably prescribed every narcotic possible … tried many different types both pills and patches. It was not until …
LPHS Journey
I am 47. My first signs of a problem was at age 19 with high blood pressure. Then at age 27 with blood in my urine thru-out my pregnancy. Next at age 33 at conception of my third pregnancy with …
LPHS and Endometriosis
Yesterday I was diagnosed with LPHS as a 28 year old female. In 2007 I was also diagnosed with endometriosis and have since had 4 surgeries to remove nerves and the endometriosis that has grown rapid in the right side …
Tags: Endometriosis, help, LPHS
My 18yr old Son Diagnosed with LPHS
Since he was about 14 years old we have been trying to find out what is wrong with our son. He is now 18 years old and we have finally found out what is wrong. He is an athlete and …
Caretakers -Parents Perspective Living with Life in Pain
Several years ago our daughter Sarah began to consistently complain of stomach pain which radiated to her back. Doctors were unable to diagnose it, and eventually dismissed her pain as a teenager’s attempt to get attention from her parents. Sarah …
Living with it…
It pains me to say this and I doubt any one will believe me, but those that have LPHS and are getting it now are luckier than those of us that got it 10 years ago. Mine began when I …
My Story with LPHS my Name is Glenna Hall
As a child had massive migraine headaches at age 3 which continued into adulthood until I had my child. Also from age of about 8 had start of problems with cystitis of the urinary bladder and a sometimes a distant …
Tags: Glenna Hall, headache, kidney, Loin pain hematuria syndrome
Some help please…
My name is Melanie, I’m 29 and I was diagnosed with LPHS in October of last year, after a 3-4 year struggle with doctors and hospitals, hundreds of tests, 5 surgeries, and living in horrible pain. Unfortunately, I’m still in …
Tags: help
10 years living with LPHS
Carol Crombie DOB 21/05/83 I have had LPHS for 10 years now. It started when I was at college, 18 years old. It started off with just a niggling pain on my right side. I was training to be a …
Update to my story (Craig)
Well I wish I had better news. Unfortunately, I have now been diagnosed with LPHS of my native right kidney (Native because both my kidneys are on my right side because of an earlier autotransplant). I started showing symptoms about …
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