Category Archives: Dystonia

MRN Loxapine caused Drug Dystonia

Dr.Hunter abused Loxapine with my cancer treatment in 2011. I was a victim of medical neglect 2003-2011. Due to second opinion test results Within normal limits. No abnormal cells. The doctor moved to Ottawa. The Houselink workers Pam Skinner and Paula Tookey and Cynthia Turner and Pauline .G. Morriss and Fiore Mester etc:; cancelled the appointment. They watched me fall in the cracks. Sue and Catlin phoned the C.A.S to confirm the visit with my daughter. My sister got drunk before the visit. She took all my TTC and cab fare away from me and i had a dump. Jason and Cathy moved out cuz of Sandra’s alcohol abuse. Jody and Jaipreet bailed Sandra out of her no tresspass order. The bad policeman bailed Sandra after she buried Fluffy in Cherry Beach. Sandra phoned me in the Cancer Ward 2 weeks after it happened. Sandra found it in Kelly’s closet. The policeman bailed Sandra out after she kicked Susan in the leg twice. Dr. Samuel Malcolmson got his patient pregnant. He is not my doctor anymore. I cant bend my arms, cant walk, cant chew my food, saliva. I had problems closing my eyes at night, blinking and eyes rolling around, chewing my inside of my mouth.

I reported him to the college. My brain was paralyzed. I cant pull my pants up. I cant shower and bathe. Drug Dystonia is in my Blue Card hospital card MRN now. Loxapine caused Dystonia. I still have it. I take Serequel now. I reported it to CCHR.

Dystonia and Parkinson’s

Hi my name is Diane I was diagnosed with Parkinson’s in 2012 iv just about had it with doctors that look right through me and don’t listen when you are trying to explain your problems I started getting dystonia in beginning December 2012 about 6 months after being diagnosed with Parkinson’s I spoke to my neurologist who also doesn’t pay much attention just said you wouldn’t jet better well I know that my arm kept twisting around till it felt like it was coming out of the socket this carried on and my toes roll under and my hand would twist and freeze in June 2014 I had a very server dystonia in my arm that continued for 2 hours I feel so strange well my young son phoned for an ambulance when they arrive they had know idea what to do with me as I seem to have pain ever were they decided to take me to AE I stood up to walk to the door when I had this unbearable pain go through my body that my legs went from under me when arriving to hospital the pain was so bad I just wanted to die I know that sounds terrible but even a nurse who had worked in AE for some years said she had never seen someone in so much pain they only part of my body on the bed was the top of my head and the tips of my toes my back was so arch up they did know how to stop the pain as they had given me everything they could I didn’t work so kings college was informed who told them to give me high dose of diesapan which with all the other drugs I’d had knock me out but since being discharged from hospital I’m still in pain every day since kings changed my parkinson’s meds which has helped but had bad attack of dystonia again to day and save me being stuck in hospital got my Gp to give me higher dose of morphine and up the diesapan which has helped but still got pain does anyone know how I get a proper diagnosis for dystonia sorry for going on but i had know one to talk to, thank you. Diane k

Chiropractors Causing Cervical Dystonia

I’m afraid my story might not be of help to anyone here as we all have some form of it. But it feels good to vent! I noticed, and it was only very rarely and under infrequent moments of duress, my neck turning involuntarily to the right and tilting up and then, within a minute or so, relaxing. It did cause me to become more aware of my neck posture and rigidity. On the belief that chiropractors are the specialists to see for neck problems I went to see one who questioned me briefly on my problem. I stated there were moments of stiffness and a curious inability to look straight ahead if I was having my picture taken for a passport photo and the like. He had me lay on my stomach and proceeded to pop out a point on my neck as well as an area between shoulder blades. Within 24 hours I was in excruciating pain and had a permanent, life-altering case of cervical dystonia for which I receive Botox injections quarterly, prescriptions for Lorazepam, Percocet and Neurontin. Plus he exacerbated discs in my back that required an operation within several months and cause intermittent bouts of pain that before my visit I had none of. I tried to sue but the burden of proof lay with me proving these conditions were non-existent before. If I did not have a modest business that allows me to make my own hours, I would without question on disability. I try not to think about that visit that changed my life. A really qualified chiropractor would have taken x-rays first and likely not applied the same treatment.

Another drug induced cause of Dystonia

I suffered from depression almost my whole life (still do). Every medication tried or combination did not help. I was put on Seroquel (a “newer”) for “mood control”. For 10 years I drifted from treater to treater, each one simply re-writing more refills for Seroquel. Once in a while someone might notice involuntary jaw movements and casually prescribe Cogentin. But nothing changed and I was soon seeing another provider. After 1O years and 80 pounds heavier I decided to stop the Seroquel myself. Exactly 3 months later the movements started. My head constantly tilted to the left and was always moving. The pain got worse and worse as the symptoms did. However, I was one of the lucky ones. Right away I went to a local neurologist who said it was Tardive Dyskenesia and referred me to the movement center in one of our many hospitals in Boston. They diagnosed it as dystonia after just 1 appointment. Some people are surprised that Seroquel would cause this life-long condition. It wasn’t on the list of the “worse” meds. But I am living proof and whenever I come in contact with someone taking it or any other neuroleptic I give them my strong warning.

Botulinum toxin injection

Botulinum toxin injection is used to treat dystonia, a neuromuscular disorder that produces involuntary muscle contractions, or spasm, that affects muscles that control movement in the eyes, neck, face, voice box, or the smooth muscle in the bladder. The goal of the therapy is to reduce muscle spasm and pain.

This potent neurotoxin is produced by Clostridium botulinum, a bacterium that causes food poisoning (botulism). There are seven known types of C. botulinum toxin, but only types A (Botox) and B (Myobloc) are used as medical treatments.

Botulinum toxin has proven to be useful in the treatment of many forms of dystonia, including the following:

blepharospasm, forceful involuntary closure of the eyelids
strabismus, misalignment of the eyes hemifacial spasm, sudden contraction of the muscles on one side of the face spasmodic torticollis, or cervical dystonia, muscle spasm in the neck that causes the head to turn to one side, and sometimes forward or backward oromandibular dystonia, continuous spasms of the face, jaw, neck, tongue, larynx, and in severe cases, the respiratory system urinary retention, severe inability to urinate that requires catheterization spasmodic dysphonia, spasm of the vocal cords that causes sudden disruption of speech stuttering, repetitions of parts of words and whole words, long pauses, elongated sounds voice tremor, quavering vocalization.

Neurons generate new nerve endings that reactivate the dystonia, so improvement is not long lasting, and treatment is usually repeated every 3 to 4 months. Physical or occupational therapy usually is undertaken to stretch and restore normal muscle function. Some patients develop antibodies to the toxin over time, rendering the treatment ineffective.

Side Effects

This is a safe and effective treatment when given in very small amounts by a qualified neurologist. Some patients experience temporary weakness in the group of muscles being treated. For example, ptosis (drooping eyelid) can develop after treating blepharospasm. Flu-like symptoms develop in some, but rarely.

Opportunities for involvement on pain management issues

American Alliance of Cancer Pain Initiatives
Phone: 608-265-4013
Web: aacpi.org

AACPI is a national organization dedicated to promoting cancer pain relief nationwide by supporting the efforts of state and regional Pain Initiatives. The AACPI provides national leadership and advocacy for the Initiative movement, recommends program direction, supports Initiative growth and development, facilitates regular communication among Initiatives, fosters collaborations with other organizations, and organizes an annual national meeting.

American Chronic Pain Association
Phone: 916-632-0922
Web: theacpa.org

ACPA is an organization dedicated to facilitating peer support and education for individuals with chronic pain and their families. It also strives to raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain.

American Pain Foundation
Phone: 888–615-PAIN or 1-888-615-7246
Web: painfoundation.org

APF was founded in 1997 and serves people with pain through information, education and advocacy. Its mission is to improve the quality of life for people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management.

General Health/Culturally Diverse Organizations

Intercultural Cancer Council
Phone:713-798-4617
Web: iccnetwork.org

ICC promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial an ethnic minorities and medically underserved populations in the US and its territories.

The National Alliance for Hispanic Health Organization
Phone: 202-387-5000
Web: hispanichealth.org

The National Alliance for Hispanic Health is the oldest and largest network of health and human service providers servicing over 10 million Hispanic consumers throughout the U.S.

Office of Minority Health
Phone: 800-444-6472
Web: omhrc.gov

Information and Personal stories of living with dystonia and dyskinesia
Web: http://www.tardivedystonia.org

Information on drugs that can and do cause dystonia

A person with medication induced dystonia.
Every now and then folks ask me to list the list of meds that can and do cause drug-induced movement disorders. This is to educate you, if you are concerned about the side effects of a drug you are currently taking, speak up, talk with your doctor. If you are starting a new one, you will be the only one to investigate it. Arm yourself with knowledge. Be an informed consumer. Listen to that little voice in your head, and be in tune with your body.

Remember, this is YOUR body. You have the right to ask questions and ultimately decide if a med is right for you. Please know that this list is limited and does NOT include all of them…for eg. Risperdal is not on it, but it does cause it. If I can help in any way with questions about this list or my other post, ask away.

*By the way, it does not take extended lengths of time taking these medications in order to experience acute dystonic reactions…for lots of folks, ONE pill is all it takes!

This drug list page is intended to provide information only! We do not advocate any particular treatment option. Therefore, it is strongly urged that patients do not change their method of treatment without first consulting with their physician.

INFORMATION ON DRUGS THAT CAN AND DO CAUSE DYSTONIA

“Some drugs in the neuroleptic category (psychiatric drugs) may cause acute dystonic reactions: thorazine, Haldol, etc. Ten to twenty percent of patients experience acute dystonic symptoms at the initiation on treatment. Some drugs that are used for nausea and gastrointestinal problems are also neuroleptic so they can cause the same problems – drugs like Reglan and Stematil. These can induce acute dystonia. All of these drugs, when they’re used over long term, carry a 20 to 30 % risk of long-term abnormal movements called tardive dyskinesia, and some people with tardive dyskinesia get a form of dystonia, called tardive dystonia. It’s an extremely difficult problem to treat.”

“Alcohol is a recognized precipitant of paroxysmal dystonia, which is a very uncommon form. On the whole, alcohol in moderation does not have an adverse effect. There is an alcohol-responsive myoclonic dystonia, which responds very well to alcohol. People who chronically abuse alcohol can get a series of involuntary movements-tremors, Parkinsonism, and tardive dyskinesia. So chronic heavy alcohol intake is still not being recommended.”

Drug Induced Dystonic Reactions:

Certain drugs have been implicated as causing dystonic reactions or dystonia. These agents are not routinely the cause of SD, but can potentiate or aggravate the preexisting disorder. The following is a listing of the drugs which have been reported OR have the potential to cause dystonic reactions. Whenever possible, dystonia patients should avoid the following agents, except at the recommendation of a physician knowledgeable in the treatment of dystonia.


GENERIC NAME TRADE NAME CLASSIFICATION
alprazolam Xanax Antianxiety agent
amitriptyline Elavil, Endep antidepressant
amoxapine Asendin antidepressant
benzquinamide Emete-Con anti-nausea/vomiting agent
bupropion Wellbutrin antidepressant
buspirone Buspar antianxiety
carbamazepine Tegretol anticonvulsant
chlorprothizene Taractan neuroleptic
chlorpromazine Thorazine neuroleptic
clomipramine Anafranil antidepressant
clozapine Clozaril neuroleptic
desipramine Norpramin antidepressant
diphenhydramine Benadryl antihistamine (Increases the
effect of other pain medications)
doxepin Adapin, Sinequan antidepressant
droperido Innovar antianxiety; anesthetic adjunct
fluoxetine Prozac antidepressant
fluphenazine Prolixin neuroleptic
haloperidol Haldol neuroleptic
imipramine Tofranil antidepressant
levodopa Larodopa, Sinemet antiparkinson agent
lithium Eskalith, Lithobid antimanic agent
loxapine Loxitane neuroleptic
mesoridazine Serentil neuroleptic
metoclopramide Reglan gastrointestinal motility stimulant;
anti-nausea/vomiting agent
midazolam Versed induction anesthetic agent
molindone Moban neuroleptic
nortripyline Aventyl, Pamelor antidepressant
perhenazine Trilafon neuroleptic
phenytoin Dilantin anticonvulsant
pimozide Orap neuroleptic
prochlorperazine Compazine anti-nausea/vomiting agent
promazine Sparine neuroleptic
promethazine Phenergan antihistamine
protriptyline Vivactil antidepressant
thiethylperazine Torecan anti-nausea/vomiting agent
thiothixene Navane neuroleptic
trifluoperazine Stelazine neuroleptic
triflupromazine Vesprin neuroleptic
thioridazine Mellaril neuroleptic
trazadone Desyrel antidepressant
trifluoperazine Stelazine neuroleptic
trimipramine Surmontil antidepressant
verapamil Calan, Isoptin antianginal, antihypertensive

Dopamine antagonists which are generally used to treat psychotic disorders and have been reported to make dystonia worse, should be used with caution. They include phenothiazine, haloperidol, tetrabenazine and pimozide. These drugs are usually avoided in the treatment of one with dystonia due to the potential to worsen dystonia. But in some cases they may be useful. It is important that the doctor prescribing these types of drugs be familiar with dystonia.

More information on drugs that can and do cause dystonia: www.wemove.org



This message was posted on MGH Message Board by hilltopok

If you would like more information about tardive syndromes and the drugs that cause them, contact her at hilltopok@msn.com or visit her website at tardivedystonia.org Remember, you could be the one to save another from a life-long painful disorder. Please educate, then pass it along. Thanks so much!