I am a 43 yr old female with a long history of kidney stones going back 18 yrs. 2 yrs ago I started having chronic left sided kidney pain with the same type of symptoms as the stones however no stones. It has taken me the full 2 years to convince the medical community I am not a drug addict nor am I suffering from a mental disorder of any kind. I am currently being treated by the pain clinic in my area and along with oral narcotic medication I am getting injections into the nerve area around my kidney with long acting anestetic medication. I am not free of pain and still have much breaktrough pain. I feel at a loss here as no one seems to have a long term solution. I would welcome any help anyone can offer.
Carolyn
I to suffer day in and day out with loin pain hematuria syndrome I am 44 and have 21 kidney stones, bleeding and pain that I swear I feel at time I could go out of my head. I have cried, walked & laid and nothing helps. My doctors tell me that my stones are just floating and I show no signs of have passing any….with the pain I am in if one of these stone do decide to pass God help me I just don’t know if I will be able to handle it.
I feel so all alone with no place to go no one understands this, and as for my doctor which is a very good doctor even he tells me that out of all the years of his practice I am probably the 3rd case he has had. I am on a pain patch with a some extra pain pills to take only when the pain is at it’s worse…..that is most of the time. I take a blood pressure pill to take the pressure out of the kidneys, which I will say has helped some with the bleeding.
My point being is I need a friend that knows what I am going through ..I did fail to mention that I also have Lupus and have had it for many many years, and with that said …I always thought that it was painful and it makes me sick but never as sick as I am now this is terrible
Donna
I am hoping this is an active site and support group. I experience chronic pain and have read many stories like my own. It is validating to read my own thoughts, feelings, and experiences – good and bad written by someone I have never met. I could you know? No one in my life understands or shares this part of my life – yet you on this site you know. So I want to talk and share and support.
Hi Anne, I would go as far to say that even when those who are close to me try to say that they understand, they really do not, no one really does unless they are in pain.