For the past seven years I have been in and out of hospitals, tests done, specialists seen, and surgeries done to help me with pain. It took me about 5 years to actually be diagnosed with LPHS. I was diagnosed my senior year of High School, along with RTA (Renal Tubular Acidosis), they say this is a primary disease to my LPHS but who knows if they really know what they’re talking about. I was involved in absolutely everything you can imagine in school. I was a two year dance officer, yearbook and newspaper writer, academic UIL team, national honor societies, and even homecoming queen ect. My pain got so bad that I was hospitalized for a week during New Years of 2011. With the grace of God I was able to push through and actually graduate high school in June of 2011. I couldn’t have done this without my amazing pain specialist Dr. Jeffery Charnov in Houston, TX. He made me feel that he knew I wasn’t making up my pain. I took a pain patch to be able to attend school. The pain patch (Fentyal) slowly went into my blood stream and maintained a constant level of pain medication to where I was able to function everyday, although I was still in pain. The pain patch takes the edge off of the pain and still allowed me to drive. Other pain medication I took would drain my energy and I couldn’t function day to day. I then found out I could get a nerve block (Celiac Plexus Block) which is a procedure done under general anesthetic, where my pain specialist injects a local anesthetic mixed with a small dose of steroids. This procedure is an outpatient one, and I can usually function after a couple of days. The pain afterwards is due to swelling in the back and you receive a series of injections to allow the affects to last longer. I usually receive two injections back to back within two weeks of each other. This is the only treatment that has given me significant relief. The longest I went without pain medicine was about two months. Over the past year I have received eight injections and I just had my eighth injection a few days ago. The injections usually lessen my pain from about an 8/10 to a 5/10. I also get kidney stones too which just makes the pain that much more excruciating. I had a Lithotripsy surgery done two months ago to break up a stone I had. I just finished my freshman year of college although it was hard to balance school with my pain, I managed to not give up and not let LPHS Get the best of me.
Keep fighting! Don’t ever give up, we’re too strong.
If anyone would like to chat, I’d LOVE to! You’re not alone and you need someone who can understand where you’re coming from!