Living with it…
It pains me to say this and I doubt any one will believe me, but those that have LPHS and are getting it now are luckier than those of us that got it 10 years ago. Mine began when I passed out in paleontology class at University – I was taken to hospital and told I had stones and they didn’t know what else – but protein and hematuria…4 years later, dozens of hospitalizations, surgeries and God only knows how many tests, I went to Mayo Clinic and Shands and BOTH finally diagnosed me with LPHS with recurrent kidney stones.
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