3 Years with LPHS and now pregnant
My name is Katie and I have been dealing with LPHS for 3 years now. I have been to several large hospitals in the central Pennsylvania area where most doctors seem sympathetic at first and then dismiss me after they realize they have no answers. I don’t understand why none of them ever research it or look into doing treatment options even if they never have before. Most of these hospitals are teaching hospitals and you would think they would grab onto a new disease to research, but apparently not.
I am now 10 weeks pregnant and the pain has been increasingly worse sine I’ve been pregnant. But now doctors are even more reluctant to prescribe me medications for pain and even when they do it is a lower dose or less pills. I want nothing more than a healthy baby and don’t want to risk hurting it with meds but at the same time I can’t function in this much pain! I have to take days off of work just to sit on the couch which doesn’t even help all the time. I’m still in severe pain when I stay still or sleep anymore!
Has anyone else gone through pregnancy with this syndrome before? And what were your experiences if so? I am literally dying to find someone to help me and am at the end of my patience trying to figure this out. Please post or email me if you have any advice. Thanks and good luck to all who have this nightmare!
Katie