Comments on: LPHS http://lifeinpain.org/node/287 You are not alone Sat, 19 May 2012 03:48:42 +0000 hourly 1 http://wordpress.org/?v=3.3.2 By: enigmatu http://lifeinpain.org/node/287#comment-58 enigmatu Wed, 30 Nov -0001 00:00:00 +0000 #comment-58 Tara, just some extra info...I did the nerve blockers, acupuncture, etc but nothing worked! I am not guaranteeing this will work but if you want more info about the surgeries I had I would love to share with you! Sarah L-Kansas City, MO Tara,
just some extra info…I did the nerve blockers, acupuncture, etc but nothing worked! I am not guaranteeing this will work but if you want more info about the surgeries I had I would love to share with you!
Sarah L-Kansas City, MO

]]> By: Helene http://lifeinpain.org/node/287#comment-61 Helene Wed, 30 Nov -0001 00:00:00 +0000 #comment-61 Hi Just wanted to let you know that I am looking into acupuncture as a method of dealing with the pain and hematuria. I will let you all know if anything good comes of it. If anyone else has ever tried this treatment or has any other treatment which has helped, please let me know. Thank you. Always looking forward to hearing from you, Helene Hi

Just wanted to let you know that I am looking into acupuncture as a method of dealing with the pain and hematuria. I will let you all know if anything good comes of it. If anyone else has ever tried this treatment or has any other treatment which has helped, please let me know. Thank you.

Always looking forward to hearing from you,

Helene

]]> By: twehe http://lifeinpain.org/node/287#comment-62 twehe Wed, 30 Nov -0001 00:00:00 +0000 #comment-62 Joy, LPHS has no real treatment. What may be good for one person is not so good for the next. I have suffered for probably more than 10 years but was diagnosed around 5 years ago. I did not have anything available to me but Vicodin or Percocet for the first 2 years.I was at the point were doctors told me it was in my head. You know when you are peeing blood there is something wrong! I have had several nerve blocks done and not one worked.They caused me great pain in the flank due to tenderness. my Nephrologist is a top nephrologist in the US. He is not very keen on Spinal Cord Stimulators and does not recommend Autotransplants for LPHS. When you have such a great pain those nerve blocks do not work. You are better off saving your money. I have a pain pump that has been a saving grace for me. my quality of life has improved for me and my family. I also have Lupus to deal with. The pump has not worked on the Lupus but has seemed to help with LPHS. If you would like more information please email me. I do not want to take up alot of space. I tend write alot. twehe@wideopenwest.com Tara Joy,
LPHS has no real treatment. What may be good for one person is not so good for the next.
I have suffered for probably more than 10 years but was diagnosed around 5 years ago. I did not have anything available to me but Vicodin or Percocet for the first 2 years.I was at the point were doctors told me it was in my head. You know when you are peeing blood there is something wrong!
I have had several nerve blocks done and not one worked.They caused me great pain in the flank due to tenderness. my Nephrologist is a top nephrologist in the US. He is not very keen on Spinal Cord Stimulators and does not recommend Autotransplants for LPHS. When you have such a great pain those nerve blocks do not work. You are better off saving your money.

I have a pain pump that has been a saving grace for me. my quality of life has improved for me and my family. I also have Lupus to deal with. The pump has not worked on the Lupus but has seemed to help with LPHS. If you would like more information please email me. I do not want to take up alot of space. I tend write alot.
twehe@wideopenwest.com
Tara

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