I am currently on Prialt. I started the program for about 6 weeks. I am getting very discouraged because of the side effects. I was at the Dr. office today, they reduced the meds going into my pump. I dont want to stop the program, but the side effects are as follows: depressed, walking way off balance, my body feel terrible, the pain hasnt reduce at all, miserable to my family. hearing sound in my head. I spoke to the office and say they would decrease it for about 5 days, to see if the side effect go away. My question – has anyone been on prialt and does the side effects go away and the most importance question DOES PAIN NO AWAY. I have been in severe chronic pain for 8 years. I do have a SCS (spinal core stimulator) also. I have been several types of mediciation. Any one out there can put any lighting on this.
I have been on Prialt for several months. Got up to 5.9 but could not handle all the side effects. the side effects were getting as bad or worse than the original pain. Over the last month i reduced my dosage to 3.8. May reduce further depending on how it works and severity of sise effects.
Currently still on a small amount of Dilaudid in my pump and on oral methadone.
Due to feeling so bad from the side effects and dealing with other major health issues I do not get to check my email like I used to.
So if you respond i will do the same as soon as I feel up to it.
Don’t stop yet. Still lots of time for things to get better
GOD love us all
kcumbie